Rheumatological diseases, often associated with adults, can significantly impact children, affecting their joints, muscles, skin, and even internal organs. Despite its prevalence, there’s a severe lack of awareness regarding these conditions in India. While Western countries have studies indicating a prevalence ranging from 1/1000 to 4/1000 children, in India, epidemiological data is scarce. Nonetheless, estimations suggest that approximately 1.3 million children suffer from Juvenile Idiopathic Arthritis (JIA) and 200,000 from Systemic Lupus Erythematosus (SLE) alone. So, raising awareness about these conditions is crucial to ensure early diagnosis and treatment.
Insights from Ankura Hospital Rheumatic Disease Awareness Day
Children with rheumatic diseases require specialized care, tailored to their unique needs. However, in India, diagnoses often come too late, leading to irreversible damage. This delayed diagnosis results in worse outcomes, impacting growth and causing permanent joint or organ damage. So, addressing this issue is crucial because it affects the overall well-being of children.
To combat this issue, World Young Rheumatic Diseases Day was celebrated at Ankura Hospital for Women and Children, Banjara Hills branch on Sunday, March 17th, 2024. The event aimed to raise awareness among parents, doctors, and primary practitioners about childhood rheumatic diseases.
Children with rheumatic disorders were given hope and resilience by the Chief Guest, Ms. Malavath Purna, a world-renowned mountaineer and the youngest female to summit Mount Everest.
Dr. Anjani Gummadi, a Pediatric Rheumatologist and Immunologist at Ankura Hospital for Women and Children, highlighted the significance of early diagnosis and prompt treatment in enabling children to lead near-normal lives. Early detection of rheumatic diseases is essential to promptly provide treatment and mitigate the risk of long-term complications, including childhood disability.
Fun activities and painting competitions engaged the kids and parents, fostering moments of joy and relief. So, alongside the enjoyment, attendees also gained valuable insights into rheumatic diseases in children. Dr. K.K. Durga Prasad, Medical Director and Senior Pediatrician at Ankura Hospital for Women and Children, expressed satisfaction in connecting with families, children, and doctors.
Symptoms of Juvenile Idiopathic Arthritis (JIA):
- Pain, swelling, and tenderness in the joints.
- Morning joint stiffness.
- Limping gait.
- Fever, rash, weight loss, swollen lymph nodes, fatigue, irritability.
- Eye redness, pain, and blurred vision.
Prevention and Management of Children Living with JIA:
- Encourage normal activities, including school, sports, and family activities.
- Encourage exercise regularly to maintain joint health.
- Follow a standard, well-balanced diet.
Signs of Systemic Lupus Erythematosus (SLE) in Children:
- Red rash on the cheeks and Nose Bridge.
- A Disc-shaped rash with raised patches.
- Skin rash due to sun exposure.
- Arthritis in multiple joints.
- Fluid buildup around the heart or lungs.
- Kidney problems, seizures, low blood cell counts.
Prevention and Management of SLE in Children:
Protect from Sun Exposure: Make sure your child avoids prolonged sun exposure and wears sunscreen and protective clothing when outdoors to prevent flare-ups of SLE symptoms.
Prioritize Adequate Sleep: Ensure your child gets enough restful sleep every night, as adequate sleep can help manage SLE symptoms and promote overall well-being.
Follow Medication Instructions: Administer all medications exactly as prescribed by your child’s doctor.
Conclusion
Raising awareness about rheumatic diseases in children is crucial for early diagnosis and effective management. Events like the one held at Ankura Hospital play a vital role in educating the community and supporting young patients on their journey towards better health and well-being. Moreover, the event received coverage in the Deccan Chronicle, highlighting its impact on community education and support for children’s well-being. So, by increasing awareness, we can facilitate timely interventions and improve outcomes for children affected by these conditions.
Reference Link: Raising Awareness on Rheumatic Diseases
